Because social media can sometimes be a cesspool of negativity, Married At First Sight’s Elizabeth Sobinoff has had to field a lot of invasive comments about her weight loss on Instagram.
WATCH: Jessika Power Defends Lizzie in Messy Feud With Cyrell
Done with the trolls, Lizzie took to Instagram to get real about her chronic illness and how it is affecting her day-to-day life.
In an incredibly brave move, Lizzie shared some unfiltered and confronting photos about the realities of living with Porphyria, a group of diseases which substances called porphyrins build up, negatively affecting the skin or nervous system which can result in hair loss, fluctuating weight and fragile skin (along with other more serious symptoms).
“This is an unfiltered image of myself. I am someone who struggles on a daily [basis] with chronic health issues,” the brave reality star began her post.
“I have lost a lot of hair at the back of my neck due to an autoimmune condition and have a rash that is psoriatic in nature that flares up in any light, artificial or natural. I have to treat my scalp every second day with a steroid otherwise it is uncontrollable.”
Lizzie finished: “I know there is a lot of comments thrown about saying sometimes I look sick, well, yes I struggle on a daily. I do the best I can.”
On top of being diagnosed with Porphyria three months ago, the reality star informed WHO magazine last year that she suffers from photosensitivity, which she describes as a “mild cousin of lupus”.
“There’s been a lot of curiosity out there, people saying to me, ‘How have you lost a bit of weight?'” she revealed.
“What I want to put out there is that I have porphyria, and how you manage porphyria is with a high carb diet. I use chocolate because my body can tolerate it right now. Before I get the ‘there are healthier alternatives’, it is working for me currently, and I get scared to try a lot of foods because my body also rejects ‘healthy food’ too, it’s not biased.
“Also lots of people out there have to be on medication, and unfortunately weight gain can be a common side effect for a lot of chronic illness meds or chronic illness in general,” Lizzie continued.
“Sometimes the weight gain in this can be more than 20 kilograms.”
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